Courtney

At 18 months old I was diagnosed with Fanconi Syndrome which caused by another disease called Cystinosis.

Kidney disease has changed my life. I find I view the world differently than most. I really appreciate every little thing and I don’t take anything for granted. I’m empathetic towards every individual that is fighting a battle most don’t understand. I became a Recreation therapist to help seniors who don’t get the empathy they deserve before my kidney disease progressed to the point it’s at now.

I’ve overcome too many obstacles to name. I’ve been chronically ill my entire life; every single day of my life I’ve had overcome obstacles. I’ll be overcoming some of my biggest struggles in the near future. I’m getting my native kidneys removed soon, because they cause me more health issues than I already have. Once my kidneys are removed I’ll be relying solely on dialysis until I find out if my youngest sister is donor match.

It’s hard most times living this life, but knowing I’m not alone in my journey has helped me get through hardships.

Cystinosis causes Fanconi syndrome. 
What’s Fanconi Syndrome? 

Fanconi syndrome is a rare disorder of kidney tubular function. It causes excess amounts of glucose, bicarbonate, phosphates (phosphorus salts), potassium, and some amino acids to be excreted through the urine (yes I said urine, get over it). 

Fanconi syndrome is completely opposite to many other kidney diseases. Many kidney disorders cause high blood pressure, high potassium, high salts etc. Fanconi syndrome cause the exact opposite.

 Courtney and her sister. Her sister has offered to be a living donor when the time comes.

Courtney and her sister. Her sister has offered to be a living donor when the time comes.

 

Location: La Crete, Alberta, Canada

Crystal

Crystal

Don

Don