Alec is in need of a living kidney donor. He is 69 years old. If he waits the estimated 6-8 years on the deceased donor list, Cedars Sinai Kidney Transplant Program will likely not perform surgery after the age of 75.
It began when my primary physician referred me to a Nephrologist around 2014 after he noticed elevated creatinine from routine annual lab work. I was diagnosed with FSGS kidney disease through a kidney biopsy shortly thereafter. I felt fine and we just watched and waited. We didn't start any kind of treatment until February 2017 when I was in late stage 4 kidney disease. We then started a heavy steroid regimen to try to slow down disease progression. Steroids compromised my immune system such that I came down with pneumonia in April 2017 and spent a week in the hospital and 3 weeks recovering from that. In May 2017 I developed a compression fracture in my vertebrae due to the weakened condition of my bones. I had back surgery (cytoplasty) in June.
These recent health occurrences have affected my life quite a bit. I was an avid hiker and traveler, and now I'm only able to do short walks. I now have Osteoporosis and I'm no longer able to do the wonderful hikes our town has to offer. I no longer have the energy to travel much either.
My biggest fear living with kidney failure is that I won't be able to find a donor.
I know there are thousands of kidney transplants done annually in the US with incredible success results. I know things will eventually work out and I will be able to again enjoy life as I have for 69 years. We also have two wonderful grandchildren (ages 2 and 3.5) that are a joy to be with. We are lucky to have them live just a few blocks away from us.
Location: Santa Barbara, CA